The Australian Chapter of BDSRA
An Epic motor-cycle ride for Battens Saturday October 29th 2016 Cheer Alanna on, as she departs on her motor-cycle around the country.  More details of her journey to come. Time:  10.30am Venue:Camp Breakaway... Read More
Connections - BDSRA FAmily Conference 2016 Friday October 28th - Monday October 31st Register now! Please download the appropriate registration form, complete and email to manager@battens.org.au Battens Family... Read More
The Batten Disease Association is an organisation dedicated to improving the well-being of patients and families suffering from Batten disease, a severe and progressive inherited neurological disorder that primarily affects children and young persons.  It is one of a group of about 50 disorders collectively known as lysosomal storage disorders.  Batten disease primarily affects brain function, leading to the loss of learned skills such as walking, talking and feeding, behavioral problems such... Read More
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).  Although Batten disease is the juvenile form of NCL, most doctors use the same term to describe all forms of NCL. Early symptoms of Batten disease (or NCL) usually appear in childhood when... Read More