The Australian Chapter of BDSRA

Library                                                              

The BDSRA has publications, books and DVDs specific to Batten

Disease information, care and management. 

1.    These items can be lent to families and members of the public.  Membership is encouraged prior to lending which assists with postage costs.  Please order your publications by contacting the Publications Librarian at info@battens.org.au.

View here for an extensive list of publications and media items.

2.    Alternatively, you may wish to download these publication in pdf format at:

http://www.bdsra.org/programs-services/bdsra-publications/

 

Brochures                                                              

This 3-fold DL size brochure provides a worthy introduction to Batten Disease and the BDSRA and can be a handy source to inform communities, schools, health professionals and family/friends.  This literature can be helpful at fundraising events to educate sponsors and the public on Batten Disease matters.

 

Short Education Film                                                              

This film was produced by the Australian Chapter as a visual and awareness of Batten Disease through the lives of three children.  It identifies the forms of Battens and their symptoms, physical changes and the affect on the family.  Narrated by a Paediatric Neurologist and provides information about research and the BDSRA.

This film is a useful tool at fundraising events or for training in a medical/therapy capacity for those with an interest in this disease and its progression.  Approx. run time of 12 minutes.  Here is an uploaded YouTube version   http://youtu.be/NRbW0MQkPR8

 

Newsletters

The BDSRA aims to provide a newsletter issue, namely the “Battens pages” every 4 months of the year.  Members can be included in an E-List in which they will automatically receive each issue.  Recent issues can be seen here.

 

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